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ASXL3 Mutations &
We are Chad and Caitlin Calder, parents of Della Calder. Della was part of the original ASXL3 study by Dr. Bainbridge published in 2013. For a long time we were on our own and even after receiving the diagnosis, we still didn't know anyone else with the mutation. We started a Facebook page, created a blog, posted on Reddit, used hashtags, and did anything else we could think of to find other families. It felt like we were throwing bottled messages into the vast ocean that is the Internet. In time, we were contacted by one family, then another, and another! Our online community has grown and is now bigger than we had ever imagined. We are not MD's, professional web designers, or genetic researchers. We are simply two parents of a beautiful daughter trying to create a website that we wish had existed back when she was diagnosed.
Please fill out the form below and we will contact you as soon as we can. We would love to hear from families, doctors, specialists, researchers, clinicians, educators, therapists, and anyone else involved with the ASXL3/BRS Community. Please feel free to send us suggestions for the site as well.
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